I get Hemiplegic Migraine and my speech is a mess (amongst other things) and I have been unable to effectively communicate for *months* now – which is hella depressing as I *was* a call centre operator.
So! I finally got to the top of the wait list for the neurology department physio … and the suggestion was – believe it or not – *chanting* (or singing if you can hold a tune better than I can).
And while now I sound like an escapee from a Gregorian Chanting choir I can get entire sentences out. Kinda thrilled about it tbh.
Just thought I’d share it with everyone as it’s such a simple work-around.
Be well, fellow Redditors 👍
Oh wow, that’s great to know! Thank you for the tip!
I get hemiplegic migraines as well, and can’t speak intelligibly when I’m in one. (Or walk, or think, or feel an entire side of my body! I look like a stroke victim) if I can salvage the speech, even a little, that would be great!
I found singing incredibly useful, also got a few laughs which definitely helped me feel better and my speech is much better again
Yes! I Found singing very therapeutic. Discovered that benefit accidentally. Helped a lot once I found my range. Keeps that neuropath affecting my speech clear. I am so relived to hear it’s not just me.
Still can’t do karaoke though. I’d freeze and have auras afterward.
I don’t think I;’d have to do this if we still spoke on phones.
Glad you found a way to communicate during attacks. I’ve been thinking about learning ASL because I have difficulty with speech from chronic brainstem migraine auras but also during the pain since it’s so intense and draining. Has anyone tried learning/using sign language?
Someone else with hemiplegic migraines?!
What is this? Are you me?
Apparently, they’re super rare!
I have not tried chanting!
Mine come on super suddenly… like stroke-fast.
I’ve only had two so far. One this year and one the last.
Both times, I called 911, thinking it was a stroke.
Both times, it was not a stroke.
I was paralyzed on my left side… even my face.
These migraines are the worst! So scary!
I have speech issues with migraines as well Botox and microdosing have helped a lot microdosing mushrooms have helped more to halt the attacks
I have hemiplegic migraine as well and have a hemiplegic episode about once a year. I wasn’t aware that the symptoms could last past the episode, as I’m completely out of commission when they come on. Every time, I’ve been put in the hospital on stroke watch for them.
My dad had a stroke and has aphasia. He can get more words out correctly with song than trying to speak normally. Haha. The doctors said this is because singing uses a different part of your brain.
I’m sorry you’re dealing with this though! That sounds quite scary and frustrating. I hope they can get you some answers and help quickly. ♥️
I do that, and recite poetry, and most important, if my speech is outta whack, I laugh and say something nice to my brain <3
Imagine how hard our brains work! They should have a Brain Worker Appreciation day.
I am very happy for you!
Not to nearly the same severity, but I get fat tongue syndrome where everything in my mouth just feels heavy and slurred. My solution has been to wink with the effected side eye and sort of talk out of the side our my mouth.
God the nervous system is a terrible thing
I remember reading somewhere about a case of a patient with a brain injury who was unable to speak, but could sing. Apparently there are different circuits used for speech and chanting/singing.
Cool! One time I saw a very hippie dippy physical therapist for my migraines who suggested I go to the ocean and sing at the top of my lungs to the sea creatures. Maybe she was on to something scientific?! Haha
So what I’m understanding is we’re all just secret Disney princesses and princes.
Are you saying that when. I can not speak because of the extreme confusion. I should trying singing?
I’ve only had a few hemiplegic migraines, but I do frequently have speech issues with all my migraines, so this is pretty helpful. I do have to wonder if I’ll be able to handle the sound of my own voice, though. Lmao
LOL I cracked up reading this. My speech also goes wonky when I have a migraine and I just imagined myself trying to sing instead of speak in the middle of an episode. I’ll have to try it next time!
Hey that’s awesome! I’m really pleased that’s working for you! I get really bad speech before a migraine so I will try that next time!
Makes sense, definitely going to try.
This never worked for me 🙁 but glad you found a solution!
I will certainly try this! I don’t have huge speech issues but I work in a call centre too and struggle to say my own name. It’s not great lol
I might not be getting it because I am currently fighting a migraine. Do you do this regularly like PT stretches? Or is it mechanism when you are struggling in the moment? Really interested!
My 12 year old daughter gets hemipelegic migraines too! Usually one a year but she’s had 3 in the last 4 weeks! Got her on lots of supplements and trying to avoid pharmaceuticals but ugh it sucks to see her suffer! Her summer has totally sucked. And after Covid it’s an extra burn. Seems like most treatments aren’t suggested for tweens….